My Moments to Breathe

Saturday, February 9, 2013

Another PICC Done!

Yesterdays Dr. Appointment went pretty well.

I blew a PFT (measures how much of your lungs are working) of about 26% (which is up about 4% and down 3% from Sept.) So needless to say, I am still not healthy but still healthier than 2 weeks ago. My eval remains in April for now and I couldn't be happier about that. I still have a month and a half to get my act and body together!!

My PICC got pulled and I am thrilled to be able to have that arm back. But man did it get beat up. I have never seen my arm so black and blue and just scrapped up from it. Which you can guess meant Cassie told her NP, Brooke, that she was going to get a port (hold your applause those who have been telling me how wonderful they are :) I am still not too excited about it!) So I will be going under a little procedure either in a few week or after my next exacerbation. So now I have to decide when to get it and if I am ready for in next week or not.

My brain is just  having a hard time catching up and coming to grips with how sick I really am...and how quickly it did and has and will it went down. I am just trying to stay strong, positive, and healthy for as long as I can on this side of the transplant. That way the other side will be "easier" and longer. 

I also gained 2 lbs in 2 weeks and I think its from the chocolate shakes I have been obsessed with. As a matter of fact, I am pretty sure after I am done here I may just need to go get one! (Don't tell Jer I am going to Culvers without him!) My appetite is still not wonderful and I know that I could easily skip meals and snacks...but I have been trying to make more of an effort not to. And more of an effort to remember to take my would think after nearly 30 years of needing them that I wouldn't be able to forget them. HA not true!

I hope all of your Saturdays are fun, relaxing, busy...whatever you want them to be! Today is my last day without Laila, so I am trying to relax and still get a crud load of stuff done. But YAY I am very excited to be getting my little "goose-ball" back. (Not sure how thrilled she will be leaving Ge, PaPop, Aunt Ang an Arch...)

Breathing is such a good feeling.

1 comment: